Yesterday was low today lower on all counts…

..PA says he sould see improvements by day 14… Right now that seems a long way off…

Doctor said fully expects him to feel like S*** today!….. and he does!

Getting platelets and 2 units of red cells again plus the daily shot…. Infusions will take over 3 hours so having already being here since 7am and now being 10:30am it’s another long day at the DFCI. Where it is Celerbrate Cancer Surviorship Day. Yes, for more birthdays!

Noel will try with Dr’s permission taking a double dose of sleeping med this evening and hope for better sleep and trying something different for the terrible itching, sadly they don’t want to give oral drugs for the horribly painful yeast infection as it would react badly with a couple of the other drugs he is taking.

We are trying to stay positive keeping our focus on the positive things to come. And trying to encourage those we meet with a smile… And a blessing…

Thanks for sticking with us through this journey… you are a great blessing to us both… God Bless you.

Record day for time spent in the clinic. 7 hours 15 mins. No wonder when children have a BMT they stay much longer as inpatients…